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Amputee Coalition of America –
National Limb Loss Information Center An information clearinghouse that provides comprehensive resources
for people with limb loss, as well as their families, friends, and the health care professionals involved with their lives. |
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ASSH, the American Society for Surgery of the Hand
is committed to providing high-quality continuing medical education to members and nonmembers across the country and around
the world. |
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Birth Defect Research for Children, Inc.
provides parents and expectant parents free fact sheets about the most common categories of birth defects. They
also offer a parent networking service that will connect you with other families who have children with the same birth defects. |
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e-Hand – The electronic textbook of hand surgery. |
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Hand surgery patient support resources |
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Helping Hands Group –
provides support and information. A special bond often develops between parents, affected children and their siblings
when families get together to share ideas and experiences. Family outings are planned for all to enjoy. These
social events offer an informal atmosphere for parents to meet each other and for children to interact with one another. |
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International Child Amputee Network (I-CAN) –
Bill Baughn and his wife, Joyce, a bilateral below elbow amputee since age six, established I-CAN and an Internet
mailing list to provide information and support contacts to children with absent or underdeveloped limbs and
their parents. |
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Miracle Kids – focuses on
children born with Fibular Hemimelia. The Mission is to "help, support, educate families, and the public who have kids born
with Fibular Hemimelia." |
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On The Other Hand – Provides information,
support, and suggestions for parents, relatives, and friends of children with hand anomalies. |
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Orthotics & Prosthetics – Provides practitioners and
patients with up-to-date, comprehensive information in an easily accessible format. |
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REACH – The Association for Children
with Hand or Arm Deficiency Reach is a UK based Association which provides information and support for families with children who
have hand or arm deficiencies, whether caused by trauma, disease or by congenital reasons. |
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STEPS – The National
Association for Children with Lower Limb Abnormalities. Based in the United Kingdom, it provides information as well as a
telephone help-line. |
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Superhands Network – A forum
for anyone who wants to learn about and network with adults and youth who have hand or upper limb differences. |
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Superkids Newsletter (Searchable Archive) – Superkids
was a newsletter for families and friends of children with limb differences published from 1981 through 2002. Superkids also published a
Directory of Families, and from 1999 to 2002 hosted Family Talk, an online conversation where parents shared insights and concerns, and readers
searched past conversations and postings on topics of interest. Superkids ended operations in October of 2002. |
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Unlimbited Possibilities, Inc. – A community where families of children with
limb differences can gather to offer support and share information. |